Produkte - Rare Disorders

Companies that offer products and services related to Rare Disorders should be in our directory which currently contains more than 2 million listings. We do our best to deliver results at finden123.com so you get the most relevant information available today in the DE for your search for Rare Disorders.

Top>Health>Conditions and Diseases>Rare Disorders>

> Agnosia
> Aicardi Syndrome
> Alstrom Syndrome
> Barth Syndrome
> Cerebrocostomandibular Syndrome
> Cleidocranial Dysplasia
> Cystinosis
> Degos
> Erythromelalgia
> Jacobsen Syndrome
> Melorheostosis
> Moyamoya
> Ollier Disease
> Pemphigoid
> Pemphigus
> Phenylketonuria
> Pierre Robin Syndrome
> Progeria
> Rubinstein-Taybi Syndrome
> Tyrosinemia
> VATER Syndrome
> Wegener's Granulomatosis

Cherubs

A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
(http://www.cherubs-cdh.org)

Contact a Family

Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
(http://www.cafamily.org.uk)

Fibrosing Mediastinitis

The least common, but most severe, late complication of histoplasmosis. Educational and research information. Includes interviews, patient stories, and a community forum.
(http://www.fibrosingmediastinitis.com)

Fibrous Dysplasia Support Online

For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
(http://members.cox.net/fdsupport/index.html)

Human Growth Foundation

Information about growth-related disorders through education, research, and advocacy. Member driven organization.
(http://www.hgfound.org/)

International Rare Disease Support Network

A community providing more than a 1000 different links to support groups for the people of all nations.
(http://www.raredisorders.com)

Kindler Syndrome

An article and case study of this rare disease. Includes links.
(http://digilander.libero.it/camdic/KINDLER.html)

Lymphangiomatosis and Gorham's Vanishing Bone Disease

Provides general informtion and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.
(http://www.gorhams.dk)

National Organization for Rare Disorders, Inc.

Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.
(http://www.rarediseases.org/)

Nomid /Cinca

Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups.
(http://pweb.netcom.com/~jkbarton/nomid/Html/nomid_home_page.)

Office of Rare Diseases

Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
(http://rarediseases.info.nih.gov/ord/)

Tetrahydrobiopterin

Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.
(http://www.bh4.org)

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